This past month has been a flurry of specialist appointments. Medical appointments combined with almost full time work is exhausting even when sharing pick ups and drop offs with your husband and the hospital is a 5 minute drive from your work.
Our suspicions surrounding Jemima and aspiration were correct, she is aspirating. After finally seeing the speech pathologist (a three month wait!) she is on thickened fluids, not coughing at all during feeding and her reflux has also improved. I had, at some point, convinced myself that no one would believe me and that they’d just say it was a cough that she’d get over, but the Speech Path was a little insulted that I’d said it & assured me that she knew the difference between a cough from a cold & aspiration. While at the speech path, the speech path noticed Jemima doesn’t open her right hand enough (Jemima was holding her bottle with the left open and the right in a tight little fist) and referred us to the physiotherapist. The physio has set exercises for us to do with Jemima to encourage her to open her right hand.
Lulu has been on the waitlist to be assessed by an Occupational Therapist for her fine motor skills and related reading and writing issues since last September and we have been told that the appointment won’t be coming up anytime soon so we have explored other options (a time consuming activity) and are heading to Melbourne in the school holidays for a SPELD appointment. SPELD were easy to deal with, apologised for not having an earlier appointment (their timing fit ours perfectly) and came recommended. SPELD is our first encounter with a non-medicare provider. Every single medical appointment for all of our children has been covered by our government health care system. Imagine the bills if it wasn’t?!
In the mix was a specialist appointment that we had forgotten Lulu has been referred for! An Immunologist consult. Whenever you get vaccinations the nurse always asks if you’ve previously had Guillain-Barre Syndrome. There is a 1 in 100 chance of GBS re-occuring if you have the flu vaccine. Lulu hasn’t been able to have the flu vaccine for this reason. The Immunologist (there were two in fact and they called a third just to be sure) looked at her case and the chance of re-occurance and have given her the green light. The initial tigger for her GBS was not the flu so it is highly unlikely that the flu vaccine will tigger GBS in Lulu. The Immunologists also agreed that Lulu could have the Meningococcal vaccine too.
Here’s to answers & confirmation.